H2Au: the stuff of our life

A personal story of our family’s life with Autism, a rare chromosome disorder and auto immune disease.

This is the story of our family and our journey through life with special needs.
We are a ‘normal’ family coping with lots of stuff. We live in Scotland, UK. Let me introduce us;
Mr H is diagnosed with High Functioning Autistic Spectrum Condition (dx as an adult in 2013), ADD and Dyslexia. He also has SPD.
Mrs H (the author) is diagnosed with Hypothyroidism, Crohn’s Disease and Fibromyalgia.
Little Miss H is diagnosed with High Functioning Autistic Spectrum Condition, Sensory Processing Disorder, a rare chromosome deletion, hypermobility, Select Mutism and has traits of Pathological Demand Avoidance (PDA).
Tiny Miss H is diagnosed with a rare chromosome deletion, Global Developmental Delay, hypermobility, hypotonia and Sensory processing Disorder.
The interplay of all these diagnoses is complex and as many are ‘hidden’ conditions/disabilities the struggle can be subtle and lonely. The aim of this blog is to raise awareness and acceptance of the very real issues that we experience. I can promise that the story is raw, real, funny, sometimes sad, informative and hopefully inspirational. We want to share our story to offer comfort and company to anyone else experiencing anything like what we have.  I hope you enjoy the read!