Two years ago, I set up this blog and Facebook page to turn our negative experience into a positive. To tell the story of our little family and what it is like to deal with Autism, an auto-immune condition and a rare genetic disorder.
The aim was to highlight our challenges, specifically autism in girls and to raise awareness so no one else had to go through what we have.
For those who don’t know, I was falsely accused of child abuse because some people within social care disbelieved my girls’ diagnoses and thought I was making it all up. They misunderstood the challenges we face, the struggles we deal with.
In essence, I was accused of Munchausen Syndrome by Proxy in all but name.
It was a harrowing experience to be so fundamentally attacked all due to a lack of understanding of autism and particularly how autism presents in girls. My character was assassinated, my life was scrutinised and I was ripped apart. After the protracted and soul-destroying fight to clear my name, I resolved to do everything in my power to increase understanding of autism in girls. My hope is that improved awareness may prevent the same happening to anyone else.
I still suffer from PTSD as a result of the false accusations and I am still healing.
We still have no support but we remain determined to be the best parents and advocates we can be for our girls.
So here we are two years on with nearly 13,000 followers. What have we achieved in that time?
- We’ve attended conferences and consultations.
- We’ve filled out forms and reports.
- We’ve written articles that have been published internationally.
- We’ve been interviewed online and on the radio.
- We’ve been a friend.
- We’ve been a port in a storm, an ear to listen.
- We’ve been company on lonely days.
- We’ve been a reference tool and a sounding board.
- We’ve been a safe place to vent.
- We’ve had great discussions.
- We’ve shared information from far and wide.
- We’ve sign posted some to places they wouldn’t have known to look.
- We’ve reassured and sometimes educated.
- We’ve made people smile.
- We’ve celebrated achievements (yours and ours).
- We’ve commiserated challenges.
- We’ve suggested solutions.
- We’ve helped some achieve a diagnosis.
- We’ve made a difference in people’s lives.
- And we will continue because; We hear you. We see you. We Get It.
There’s still so much more to do. Change is still needed but it is possible, so we will continue.
So thank you for being here. Thank you so much for being part of the H2Au story.
You are our tribe. You are our support. You are helping us heal.
You are appreciated more than you know.